Registry connects individuals with Down syndrome with researchers
Bethesda, Maryland–(ENEWSPF)–October 26, 2012. A new Down syndrome patient registry will facilitate contacts and information sharing among families, patients, researchers and parent groups. The National Institutes of Health has awarded a contract to PatientCrossroads to operate the registry. The company has created patient-centric registries for muscular dystrophy and many rare disorders.
People with Down syndrome or their family members will be able to enter contact information and…
